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Search Fulltext search Activities Professionals Research groups News - Any - Estudio de fase 2 de la infusión de células T autólogas, diferenciadas y de sangre periférica expandidas y transducidas con un lentivirus para expresar un receptor de antígeno quimérico con especificidad anti-CD19 (A3B1) junto con regiones coestimuladoras 4-1BB y CD3z (ARI- 0001 células) en niños y adolescentes (de 0 a 18 años) con leucemia linfoblástica aguda CD19+ resistente o refractaria al tratamiento Contact Protocol code: CART19-BE-03PED EudraCT code: 2022-001101-52 Pathology: Acute lymphoblastic leukemia Pharmac: Autologous, differentiated, peripheral blood T-cells expanded and transduced with a lentivirus to express a chimeric antigen receptor with anti-CD19 specificity (A3B1) coupled with 4-1BB and CD3z co-stimulatory regions (ARI-0001 cells) Promoter: Fundació Sant Joan de Déu Principal investigator: Díaz de Heredia Rubio, Maria Cristina Research group: Càncer i malalties hematològiques infantils Service: Oncohematologia Pediàtrica Phase: Fase II Recruiting: Open Status: Activo Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Evaluación de la eficacia y seguridad de la inmunoterapia subcutánea (Beltavac®) con extracto alergénico polimerizado de mezcla de ácaros del polvo en pacientes con rinitis/rinoconjuntivitis alérgica Contact Protocol code: PRO-RCT-ACAROS-2018-01 EudraCT code: 2018-003427-11 Pathology: Allergic rhinoconjunctivitis due to exposure of house dust mites Pharmac: Subcutaneous immunotherapy (Beltavac®) Promoter: Probeltepharma Principal investigator: Garriga Baraut, Maria Teresa Research group: Creixement i desenvolupament Service: Al·lergologia i Pneumologia pediàtrica Phase: Fase III Recruiting: Open Status: Activo Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Estudio de extensión, abierto de 52 semanas para evaluar la pimavanserina en niños y adolescentes con irritabilidad asociada al trastorno del espectro autista (TEA) Contact Protocol code: ACP-103-070 EudraCT code: 2021-005388-32 Pathology: Irritability associated with autistic disorder in children and adolescents with ASD Pharmac: Pimavanserin Promoter: Acadia Principal investigator: Gisbert Gustemps, Laura Research group: Psiquiatria, salut mental i addiccions Service: Psiquiatria Phase: Phase II Recruiting: Closed Status: Cerrado Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Estudio de fase 2 abierto para evaluar la seguridad, tolerabilidad, farmacocinética y farmacodinámica de sotatercept (MK-7962) en niños de entre uno y menos de 18 años con HAP que reciben el tratamiento habitual. Contact Protocol code: MK-7962-008 EudraCT code: 2022-000478-25 Pathology: Pulmonary arterial hypertension Pharmac: Sotatercept (MK-7962) Promoter: Merck Sharp & Dohme Principal investigator: Moreno Galdó, Antonio Research group: Growth and Development Service: Al·lergologia i Pneumologia pediàtrica Phase: Phase II Recruiting: Closed Status: Finalizado Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Ensayo de extensión abierto para evaluar la seguridad a largo plazo de KVD900, un inhibidor oral de la calicreína plasmática, para el tratamiento ademanda de las crisis de angioedema en pacientes adolescentes y adultos con angioedema hereditario de tipo I o II Contact Protocol code: KVD900-302 EudraCT code: 2021-001176-42 Pathology: Hereditary Angioedema Type I or II Pharmac: KVD900 (oral Plasma Kallikrein Inhibitor) Promoter: Kalvista Pharmaceuticals Principal investigator: Guilarte Clavero, Mar Research group: Malalties sistèmiques Service: Al·lergologia Phase: Phase III Recruiting: Closed Status: Cerrado Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Estudio de fase I/II multicéntrico en el que se evalúan la eficacia y la seguridad de ribociclib (LEE011) en combinación con topotecán y temozolomida (TOTEM) en pacientes pediátricos con neuroblastoma recidivante o refractario y otros tumores sólidos Contact Protocol code: CLEE011Q12101 EudraCT code: 2021-005617-14 Pathology: Relapsed or refractory neuroblastoma and other solid tumors (including medulloblastoma, high grade glioma, malignant rhabdoid tumors, and rhabdomyosarcoma) Pharmac: Ribociclib (LEE011) in combination with topotecan and temozolomide (TOTEM) Promoter: Novartis Principal investigator: Moreno Martín-Retortillo, Lucas Research group: Childhood Cancer and Blood Disorders Service: Pediatric Oncohematology Phase: Phase II Recruiting: Open Status: Activo Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Odevixibat (A4250) in children with biliary atresia (BOLD-EXT) Contact Protocol code: A4250-016 EudraCT code: 2022-501090-39-00 Pathology: Biliary Atresia Pharmac: Odevixibat Promoter: Albireo AB Principal investigator: Quintero Bernabeu, Jesús Research group: Cirurgia Hepato-bilio-pancreàtica (HBP) i Trasplantament hepàtic Service: Hepatologia pediàtrica i trasplantament hepàtic Phase: Phase III Recruiting: Open Status: Activo Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Estudio en fase III, multicéntrico, aleatorizado, doble ciego y controlado con placebo para evaluar la eficacia y la seguridad de mitapivat en sujetos pediátricos con deficiencia de piruvato cinasa que no reciben transfusiones con regularidad, seguido de un periodo de extensión abierto de 5 años Contact Protocol code: AG348-C-023 EudraCT code: 2021-003333-11 Pathology: Pyruvate Kinase Deficiency Pharmac: Mitapivat Promoter: Agios Pharmaceuticals Principal investigator: Murciano Carrillo, Thaïs Research group: Childhood Cancer and Blood Disorders Service: Pediatric Oncohematology Phase: Phase III Recruiting: Closed Status: Finalizado Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Ensayo clínico de fase II, doble ciego, aleatorizado, de múltiples dosis, cruzado, de tres tratamientos, tres períodos y seis secuencias, controlado con placebo, para evaluar la eficacia, farmacocinética, farmacodinámica, la seguridad y la tolerabilidad de bromuro de glicopirronio en niños con asma de 6 a menos de 12 años de edad Contact Protocol code: CQVM149C2201 EudraCT code: 2021-004972-32 Pathology: Asthma Pharmac: Glycopyrronium (bromide) Promoter: Novartis Principal investigator: Garriga Baraut, Maria Teresa Research group: Growth and Development Service: Al·lergologia i Pneumologia pediàtrica Phase: Phase II Recruiting: Open Status: Activo Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Ensayo en fase III, doble ciego, aleatorizado y controlado con placebo del tratamiento adyuvante con ganaxolona (GNX) en niños y adultos con epilepsia relacionada con el complejo de esclerosis tuberosa (CET) (TrustTSC) Contact Protocol code: 1042-TSC-3001 EudraCT code: 2021-003441-38 Pathology: Epilepsia relacionada con CET Pharmac: Ganaxolone (GNX) Promoter: Marinus Pharmaceuticals, Inc Principal investigator: Abraira del Fresno, Laura Research group: Grup de recerca de l'estat epilèptic i crisis agudes Service: Neurologia Phase: Phase III Recruiting: Closed Status: Cerrado Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Estudio con enmascaramiento doble, controlado con placebo, de aumento progresivo de la dosis ara evaluar la eficacia, la seguridad y la farmacocinética de la voclosporina en adolescentes con nefritis lúpica Contact Protocol code: AUR-VCS-2020-03 EudraCT code: 2020-005807-37 Pathology: Nefritis lúpica Pharmac: Voclosporin Promoter: Aurinia Pharmaceuticals Inc Principal investigator: Ariceta Iraola, Gema Research group: Fisiopatologia renal Service: Nefrologia Pediàtrica Phase: Phase III Recruiting: Closed Status: Cerrado Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Estudio aleatorizado, doble ciego y controlado con placebo para evaluar la seguridad y la eficacia de crinecerfont (NBI-74788) en sujetos pediátricos con hiperplasia suprarrenal congénita clásica, seguido de un tratamiento abierto Contact Protocol code: NBI-74788-CAH2006 EudraCT code: 2020-004381-19 Pathology: Classic Congenital Adrenal Hyperplasia (CAH) Pharmac: Crinecerfont (NBI-74788) Promoter: Neurocrine Biosciences Principal investigator: Clemente Leon, Maria Research group: Growth and Development Service: Endocrinologia pediàtrica Phase: Phase III Recruiting: Closed Status: Finalizado Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Estudio de cohortes de fase 2, con un solo grupo, abierto para evaluar la seguridad, la eficacia y lafarmacocinética del tratamiento con esparsentán en pacientes pediátricos con determinadasenfermedades glomerulares proteinúricas (EPPIK). Contact Protocol code: RTRX-RE021-201 EudraCT code: 2021-000621-27 Pathology: Proteinuric glomerular diseases including: Focal segmental glomerulosclerosis (FSGS) Minimal change disease (MCD) Immunoglobulin A nephropathy (IgAN) Immunoglobulin A vasculitis (IgAV) Alport syndrome (AS) Pharmac: Sparsentan Promoter: Travere Therapeutics Principal investigator: Ariceta Iraola, Gema Research group: Kidney Physiopathology Service: Pediatric Nephrology Phase: Phase II Recruiting: Closed Status: Finalizado Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Estudio en fase III, multicéntrico, aleatorizado, doble ciego y controlado con placebo para evaluar la eficacia y la seguridad de mitapivat en sujetos pediátricos con deficiencia de piruvato cinasa que reciben transfusiones con regularidad, seguido de un periodo de extensión abierto de 5 años Contact Protocol code: AG348-C-022 EudraCT code: 2021-003265-36 Pathology: Pyruvate Kinase Deficiency Pharmac: Mitapivat Promoter: Agios Pharmaceuticals Principal investigator: Murciano Carrillo, Thaïs Research group: Childhood Cancer and Blood Disorders Service: Pediatric Oncohematology Phase: Phase III Recruiting: Closed Status: Finalizado Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Estudio de fase I/II, de escalada de dosis y expansión de dosis, de ZN-c3 en combinación con gemcitabina en adultos y niños con osteosarcoma recidivo o refractario al tratamiento. Contact Protocol code: ZN-c3-003 EudraCT code: 2021-000021-27 Pathology: Osteosarcoma recidivado o resistente al tratamiento Pharmac: Gemcitabine Promoter: K-Group Beta Principal investigator: Gros Subias, Luís Research group: Childhood Cancer and Blood Disorders Service: Pediatric Oncohematology Phase: Fase I Recruiting: Closed Status: Cerrado Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Ensayo clínico de fase I/II de terapia de genes de células madre hematopoyéticas autólogas para inmunodeficiencia combinada grave con deficiencia de RAG1. Contact Protocol code: RAG1-2019-01 EudraCT code: 2019-002343-14 Pathology: Patients with severe combined immunodeficiency (SCID) based on a genetic defect in the Recombinase Activating Gene 1 (RAG1) Pharmac: AUTOLOGOUS HEMATOPOIETIC STEM CELL GENE THERAPY Promoter: Leiden University Medical Center (LUMC) Principal investigator: Soler Palacín, Pere Research group: Infecció i immunitat al pacient pediàtric Service: Patologia Infecciosa e Inmunologia pediàtrica Phase: Phase II Recruiting: Open Status: Activo Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Estudio de extensión, abierto, multicéntrico y en pacientes ambulatorios, para evaluar la seguridad y la tolerabilidad de Staccato® Alprazolam en participantes en el estudio de 12 o más años de edad con estereotipias prolongadas Contact Protocol code: EP0165 EudraCT code: 2021-002637-42 Pathology: Treatment of stereotypical prolonged seizure Pharmac: Staccato Alprazolam Promoter: UCB Biopharma Principal investigator: Abraira del Fresno, Laura Research group: Research Group on Status Epilepticus and Acute Seizures Service: Neurology Phase: Phase III Recruiting: Open Status: Activo Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Estudio para investigar la eficacia y la seguridad de Staccato® alprazolam enparticipantes en el estudio >=12 años de edad con epilepsia Contact Protocol code: EP0162 EudraCT code: 2021-002686-18 Pathology: Stereotypical prolonged seizure Pharmac: Staccato Alprazolam Promoter: UCB Biopharma Principal investigator: Abraira del Fresno, Laura Research group: Research Group on Status Epilepticus and Acute Seizures Service: Neurology Phase: Phase III Recruiting: Open Status: Activo Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Ensayo Clínico de transferencia génica fase I/II con scAAV9.U1a.hSGSH para la Mucopolisacaridosis (MPS) tipo IIIA Contact Protocol code: ABT-001 EudraCT code: 2015-003904-21 Pathology: Mucopolysaccharidosis type IIIA Pharmac: ScAAV9.U1a.hSGSH Promoter: Abeona Therapeutics Principal investigator: Del Toro Riera, Mireia Research group: Neurologia infantil Service: Neurologia pediàtrica Phase: Phase II Recruiting: Closed Status: Finalizado Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information The request for information on a research project or clinical trial does not entail inclusion in it. Estudio multicéntrico de fase?3, aleatorizado, controlado con placebo, doble ciego, para evaluar la eficacia y la seguridad del pegcetacoplán en pacientes con glomerulopatía C3 primaria o glomerulonefritis membranoproliferativa mediada por inmunocomplejos Contact Protocol code: APL2-C3G-310 EudraCT code: 2020-003767-25 Pathology: Glomerulopatía C3 primaria o glomerulonefritis membranoproliferativa mediada por inmunocomplejos Pharmac: Pegcetacoplan Promoter: Apellis Pharmaceuticals Principal investigator: Ariceta Iraola, Gema Research group: Kidney Physiopathology Service: Pediatric Nephrology Phase: Phase III Recruiting: Closed Status: Cerrado Contact Form Name* First surname* Second surname Email address* Telephone* Write your question* I have read and accept the data protection policy *. I have read and accept the data protection policy *. CAPTCHA This question is for testing whether or not you are a human visitor and to prevent automated spam submissions. Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.Purpose: Request for information on VHIR clinical research.Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. 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