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Luz Elena Valderrama Orenday

Institutions of which they are part

Research technician
Childhood Cancer and Blood Disorders
Vall Hebron Institut de Recerca

Luz Elena Valderrama Orenday

Institutions of which they are part

Research technician
Childhood Cancer and Blood Disorders
Vall Hebron Institut de Recerca

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The integration of Patient-Reported Outcome Measures (PROMs) will make it possible to incorporate patients' experiences and quality of life into research on sickle cell disease and other rare anaemias.

The Scientific Coordinator of ERN-EuroBloodNet will lead for one year the group that defines the common strategy of the European Reference Networks to improve care for rare and complex diseases.

Vall d’Hebron participates as a reference centre in Spain for early-phase clinical trials and coordinates the national ReALLNet network, promoting research into relapsed acute lymphoblastic leukemia.

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