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14/03/2013

ACADIP will direct donations through the VHIR's website 'Yo investigo'

2013_0066_2013_0066_IMATGE

14/03/2013

Both entities sign an agreement related to Primary Immune Deficiency

Vall d’Hebron Research Institute (VHIR) signed an agreement with the "http://www.acadip.org/" Catalan Association of Primary Immune Deficiency (ACADIP) to direct the donations that the members want to send to research projects. The contributions will be paid through the VHIR’s fundraising website "http://www.yoinvestigo.org/" 'yoinvestigo.org' (‘faigrecerca.org’, in Catalan).ACADIP is an association which gathers patients diagnosed with any type of Primary Immune Deficiency and gives support to them and their families. One of its goals is working with the research community to improve the quality of life of the patients, as well as doing activities to spread and improve the comprehension of the society on this infectious disorder.The next campaign will take place during the World Immune Week, which starts the 22nd of April: the association will present a book and will celebrate a party for children at Messi Park at Vall d’Hebron University Hospital and a gymkhana for familiars. Besides, VHIR will organize the seminar “ "http://www.vhir.org/activitats/relacioactivitats_detall.asp?Idioma=es&any=2013&num=38&mv1=4&mv2=1&titol=Allogeneicity+and+Immunogenici" Primary Immune Deficiencies: a bond between assistance and research”. Primary Immune Deficiencies are a group of several disorders motivated by the quantitive and/or functional alterations of the different mechanisms implied in the immune response, which affects 1 of 2000 people, mainly children. Patients are susceptible to suffer infections that, if are not treated properly, can be lethal or leaving sequels which could worsen their quality of life. The agreement among both organizations was formalized the 13rd of March with the presence of ACADIP’s president, Gaspar Puig, the vicepresident, Carlota Villar, and the secretary of the association, Jordi Carnero, representing VHIR, Dr. Joan X. Comella signed the agreement, together with Dr. Pere Soler, member of the Infection in Immunocompromised Pediatric Patients group at VHIR.

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