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27/10/2014

Donation for ALS, in memory of Francesc Bonvehí

2014_0224_IMATGE

27/10/2014

The participants raised 1,288 euros for the research in this disease at VHIR

Friends and relatives of Francesc Bonvehí donated 1,288 euros for the research in Amyotrophic Lateral Sclerosis (ALS) carried out by the "http://www.vhir.org/larecerca/grupsrecerca/ca_grups_equip.asp?Idioma=en&mv1=2&mv2=1&mh1=2&mh2=1&mh3=1&mh4=0&ms=0&area=4&grup=12&menu=3" Peripheral Nervous System group, led by Dr. Josep Gámez at Vall d’Hebron Institute of Research (VHIR). Francesc Bonvehí i Trench had ALS and died because of this disease just a few hours after the collective ice bucket challenge that he promoted at the main square of Manresa at the end of September. That day, many friends and relatives got wet for his cause, many of them from his association “Grup Sardanista Dintre el Bosc” and from the “Geganters de Manresa”, in which he was the vice-president. The funds raised at the party were donated to the VHIR and to the Miquel Valls Foundation, which is a non-profit organization with the aim to improve the quality of life of patients with ALS. Dr. Gámez group is currently working on three different research lines dedicated to the study of molecular mechanisms and genetic mutations of the disease. The group is also part of ALSUntangled, an international network of clinical experts with the aim of offering alternative or off-label ALS treatments.Besides the research team, the Vall d’Hebron University Hospital has an interdisciplinary unit devoted to the care of ALS patients, which serve nearly 100 out of the 400 affected that are in Catalunya. The cause of ALS is unknown and there is no cure or treatment available. It is a debilitating disease characterized by the loss of motor neurons which cause rapidly progressive weakness, muscle atrophy and the death of the patients by breathing failure.

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