03/06/2014 Dr. Gámez and Dr. Munell participated in a meeting for patients with neuromuscular diseases 03/06/2014 Patients, researchers and health care professionals attended the different conferences and workshops Dr. Josep Gámez, head of the Peripheral Nervous System group at Vall d’Hebron Institute of Research (VHIR), and Dr. Francina Munell, researcher from the Pediatric neurology group, participated in the "http://www.asemcatalunya.com/index.php/jornada-datencio-a-les-persones-amb-malalties-neuromusculars" meeting for patients with neuromuscular diseases organized by the Catalan association of patients with these diseases (ASEM Catalunya) on Saturday at Sant Andreu (Barcelona). Dr. Gamez conducted the workshop entitled “State of the art in health care attention to patients with Steinert dystrophy”, which is the most common muscular dystrophy among adults. He called for the need to establish multidisciplinary units of experts and agreed that medical guidelines are needed as well as psychological services to the families.On the other side, Dr. Munell presented the workshop “State of the art in health care attention to children affected with dystrophinopathies”, with an active participation of the patients’ parents and physiotherapists. In her speech, she explained why the dystrophin deficit causes the Duchenne and Becker diseases, which are the current treatments available and the multidisciplinary health care attention that these patients receive. Besides these workshops, there were discussions and conferences carried out by Catalan researchers and clinicians with deep expertise in these pathologies. Twitter LinkedIn Facebook Whatsapp