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28/02/2011

European Rare Disease Day

2011_0043_2011_0043_IMATGE

28/02/2011

Dr. Antoni Andreu, Head of the Neuromuscular and Mitochondrial Diseases Research Group at Vall d’Hebron Research Institute (VHIR), is interviewed by OrphaNews on the occasion of European rare diseases day. Dr. Andreu, CIBERER member, explains his experience with McArdle disease database, a project that demonstrates that funding for registries can be very helpful. OrphaNews is the newsletter of European Union Committee of Experts on Rare Diseases.

Dr. Antoni Andreu, Head of the Neuromuscular and Mitochondrial Diseases Research Group at Vall d’Hebron Research Institute (VHIR), is interviewed by OrphaNews on the occasion of European rare diseases day. Dr. Andreu, CIBERER member, explains his experience with McArdle disease database, a project that demonstrates that funding for registries can be very helpful. OrphaNews is the newsletter of European Union Committee of Experts on Rare Diseases.

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