20/09/2016 The Jeffrey Modell Foundation recognizes Vall d'Hebron as a centre of excellence 20/09/2016 Vall d'Hebron Barcelona Hospital Campus, thanks to the efforts led by the multidisciplinary Unit of Paediatric Infectious Pathology and Immunodeficiencies (UPIIP) Mother and Child Hospital Vall d'Hebron is the first centre in the country to be recognized as a centre of excellence by the prestigious Jeffrey Modell Foundation (JMF). Vall d'Hebron Barcelona Hospital Campus, thanks to the efforts led by the multidisciplinary http://bit.ly/1UeWCvi Unit of Paediatric Infectious Pathology and Immunodeficiencies (UPIIP) Mother and Child Hospital Vall d'Hebron is the first centre in the country to be recognized as a centre of excellence by the prestigious http://bit.ly/1aNAmbO Jeffrey Modell Foundation (JMF). This organization, based in the United States, aims to promote early diagnosis and treatment of these diseases, and care for patients and neonatal screening. Worldwide, there are 150 Jeffrey Modell centres for diagnostic and research.Dr. Pere Soler, UPIIP physician and head of the http://www.vhir.org/portal1/grup-equip.asp?s=recerca&contentid=186977&t=Infecci%F3%20en%20el%20Pacient%20Pedi%E0tric%20Immunodeprimit Infection in Immunocompromised Paediatric Patient research group, has described as a "success to be the first Jeffrey Modell centre of excellence in the country." "It is a recognition of the work done at our centre for many years and encourages us to continue seeking excellence in the care of our patients with PID," said Dr. Soler, who recalled that the recognition of the foundation comes after years of work. In this period there has been a collaboration between the two organizations. Vall d'Hebron has provided patient data every two years, as well as information about diagnostic practices, haematopoietic stem cell transplant and monitoring of adult patients, among others. A task that was undertaken with the collaboration of the http://bit.ly/1FFaLMt Barcelona PID Foundation and the http://bit.ly/2b2H2aF Catalan Association of Immune Deficiencies (ACADIP). A centre leader in the diagnosis of PIDVall d'Hebron is a leader in the care of patients with these diseases, with more than 700 patients (410 of them paediatric) diagnosed in Catalonia and Spain. In fact, 70% of the diagnosed PID detected in Catalonia. In addition, the work with the http://bit.ly/1EbAqNZ Immunology Service, in collaboration with the Haematopoietic Stem Cell Transplant Unithttp://bit.ly/XDRoOH of the Paediatric Haematology and Oncology Service, among other services, place the Hospital among the centres of reference in Europe. In addition, as a differentiating factor compared to other centres, it has a program of transition from paediatric patients to adult units in the transversal program of rare diseases.At the same time, Vall d'Hebron Barcelona Hospital Campus also promotes research in this field through the work of VHIR, in particular the http://bit.ly/2anJ8gr research group of infection in immunocompromised paediatric patients. Led by Dr. Pere Soler, mainly consists of paediatricians of the UPIIP. The research focuses primarily in immunocompromised paediatric infections and optimizing the diagnosis and treatment of various PID. The http://bit.ly/2b83sV7 Immunology group, led by Dr. Ricardo Pujol, also research into these diseases. Primary immunodeficienciesPID are a group of diseases called rare or minority caused by alterations in the immune system. Overall affecting one in every 2,000 newborns alive. Within this group there are more than 300 diseases. Affected patients are susceptible to infections of varying severity, autoimmune diseases and malignancies which, if not properly treated, can be fatal or leave sequelae that worsen their quality of life. Early diagnosis and research to find more effective treatments are key to ensure the survival of the affected people and improve their quality of life, reducing the consequences. The Jeffrey Modell FoundationThe Jeffrey Modell Foundation is a private non-profit organization created in 1987 by Vicki and Fred Modell in honor of his son, Jeffrey, who died at the age of 15, victim of a primary immunodeficiency. Its objective is the promotion of early diagnosis and treatment of these types of diseases, and care for patients and neonatal screening. The organization has founded 150 diagnostic centres and research centres, and its network covers eighty countries. Among its challenges is the recent agreement reached with the Bill & Melinda Gates Foundation to assist in the eradication of polio. Twitter LinkedIn Facebook Whatsapp