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23/04/2013

Vall d'Hebron participates in the campaign to aware and raise funds on research in PID

23/04/2013

Coinciding with the World Primary Immune Deficiency week, VHIR has organized a seminar

Vall d’Hebron participates in the campaign “Primary Immune Deficiencies: Turning hope into action”, organized by the "http://www.acadip.org/" Catalan Association of Primary Immune Deficiency (ACADIP), coinciding with the World Week against these disorders which affect the immune system.Among the different activities scheduled for these days, Vall d’Hebron Institute of Research (VHIR) celebrated on Wednesday 24th the seminar "http://www.vhir.org/salapremsa/mitjans/mitjans_detall.asp?any=2013&num=106&mv1=5&mv2=1&Idioma=ca" “ "http://www.vhir.org/salapremsa/mitjans/mitjans_detall.asp?any=2013&num=106&mv1=5&mv2=1&Idioma=ca" Primary Immune Deficiencies (PID): a link between assistance and research "http://www.vhir.org/salapremsa/mitjans/mitjans_detall.asp?any=2013&num=106&mv1=5&mv2=1&Idioma=ca" ”, with the lectures of Dr. Pere Soler, Dr. Concepción Figueras and Dr. Mónica López, from the research group in Infection in Immunocompromised Pediatric Patients. ACADIP also participated in the seminar, with a presentation about the experience of patients with PID. Besides this seminar, on Saturday 27th Vall d’Hebron University Hospital (HUVH) will host the celebration of the first PID children party at the Plaça Messi.The goal of the campaign is to raise awareness on the severity of these pathologies, to promote into the scientific community the knowledge in DIPs, and to raise funds to encourage research in this field. DIPs are a group of rare diseases caused by alterations in the immune system of children, which globally affect 1 of 2,000 newborns. Patients are susceptible to suffer infections that, if are not treated properly, can be lethal or leave sequels that would worsen their quality of life. At VHIR, the research group in Infection in Immunocompromised Pediatric Patients, led by Dr. Concepción Figueras, and the group in Immunology, led by Dr. Ricard Pujol, investigate these disorders with the cooperation of the Pediatric Infectious Diseases Unit at HUVH. This unit has positioned the hospital in the forefront of the assistance to patients with DIPs, with nearly 700 patients diagnosed.

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