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14/10/2014

A day of hope for patients with multiple myeloma

2014_0215_IMATGE

14/10/2014

Patient Power organized the 1st patient conference in Spain, on October 11

More than a hundred patients with myeloma (bone marrow cancer) and their families took part on the "http://www.patientpower.info/11oct" 1st Meeting for patients in Spain, last Saturday in the Vall d’Hebron University Hospital, with the aim to open dialogue with the best researchers in the disease in Spain that are, also, among the world elite. The meeting was organized by Patient Power, the Vall d’Hebron Institute of Research (VHIR) and the Catalan Institute of Oncology.Doctors Mercè Gironella, responsible of Myeloma at the Vall d’Hebron Hospital and "http://www.vhir.org/larecerca/grupsrecerca/ca_grups_equip.asp?Idioma=en&mv1=2&mv2=1&mh1=2&mh2=1&mh3=1&mh4=0&ms=0&area=1&grup=17&menu=3" researcher at VHIR, Albert Oriol, from the Catalan Institute of Oncology, María Victoria Mateos, from the University Hospital of Salamanca, and Francesc Bosch, head of Hematology at the Vall d’Hebron Hospital "http://www.vhir.org/larecerca/grupsrecerca/ca_grups_equip.asp?Idioma=en&mv1=2&mv2=1&mh1=2&mh2=1&mh3=1&mh4=0&ms=0&area=1&grup=17&menu=3" and VHIR, sent an optimistic message. Dr Bosch explained that “at the rate we are going, we will be able to cure some cancers in 10 or 15 years”.Actually, treatments nowadays allow most of the patients a good quality of life during quite some years. Elisa, patient of myeloma for many years, explained that “I go ahead, have a normal life, even now that I have relapsed, and even at a time I lost my ability to walk”. Mercè, another patient, explained that it’s been 11 years since she was diagnosed and that she goes ahead “thanks to the doctors”.In the last years powerful medicine has been released that allow treating the patient once he or she relapses and, moreover, are less toxic than years ago. What is clear is that patients are now active part of the fight against the disease: “Before there was a tennis match between the doctor and the diseased, now it is a doubles match against the myeloma”, summarized Dr Oriol. Doctor Gironella also stressed that it is a shared fight in which “it is fundamental that there is trust between the doctor and the patient”.There was algo room for discussing the paper of caregivers and family of patients with cancer, as well as the emotional management in the diagnosis of the disease. The hashtag "https://twitter.com/search?q=%23mielomavallhebron&src=typd" #mielonaVallHebron moved the meeting online, as it can be read in this "https://storify.com/PatientPowerES/jornada-patient-power-de-mieloma-multiple" online summary.

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