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25/10/2018

New donation from the BCN-PID Foundation to study the quality of life in patients with primary immunodeficiencies

PID-BCN_VHIR_884

25/10/2018

The donation will be used to develop the project "Assessment of quality of life indicators for children with primary immunodeficiency" as part of the initiative "I'm not alone"

The Barcelona PID Foundation for Primary Immunodeficiencies in Pediatrics (BCN-PID) has made a new donation to the http://en.vhir.org/web_vhir/portal1/grup-presentacio.asp?s=recerca&contentid=186976&idrefer= Infection in Immunocompromised Pediatric Patients Research Group at the Vall d'Hebron Research Institute (VHIR) as part of the comprehensive project for patients with primary immunodeficiencies "I'm not alone". On this occasion, money will be used to hire a psychologist to develop the project "Assessment of quality of life indicators for children with primary immunodeficiency".With the signing of this collaboration agreement, the research group led by Dr. Pere Soler, received a donation of euros 45,815 from the BCN-PID to carry out research activities on the quality of life and the comprehensive care of patients with primary immunodeficiencies and their families.The http://www.pidfoundationbcn.org/en BCN PID Foundation is an initiative of a group of professionals dedicated to the pediatric care of Primary Immunodeficiencies (PID) and their infectious complications in conjunction with patients' relatives that aims to promote knowledge and research in PID, as well as support comprehensive care for these children and their relatives and caregivers.Primary ImmunodeficienciesPID are the result of a congenital defect (and therefore a chronic disease) that alters the different mechanisms involved in the immune response, which makes the patient susceptible to allergies, autoimmune diseases or various infections that, if not treated properly, can cause permanent effects or have fatal consequences. In many cases, this leads to medical controls and hospital treatments that, apart from affecting physically, have a psychological and social effect on the patients and their relatives.Today, Primary Immunodeficiencies affect 1 in 2,000 infants, and 60% of the patients affected are paediatrics.

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