Coinciding with the "http://www.rarediseaseday.org/" "http://www.rarediseaseday.org/" Rare Disease Day, here is the testimony of Didac’s parents, whose two-year-old son was born with a Primary Immune Deficiency (PID), a rare disease caused by alterations in the immune system.During the last couple of months, the family raised over 10,000 euros to encourage research at Vall d’Hebron Institute of Research (VHIR) in this disease that caused the death of Juan, Didac’s Elder brother. As his father reports, “these diseases are not rare because they are more difficult to heal, but because in research there isn’t enough time to study them”. According to the "http://www.enfermedades-raras.org/" Spanish association of rare diseases, nearly 3 million people in Spain suffer one of the 7,000 rare diseases registered in the country. Nearly 200 of them are being investigated at VHIR, with a funding over 10M euros, and more than 200 clinical trials in this field have been conducted in the last 4 years. Research in rare diseases is a priority for VHIR and that’s why the Institute will organize this year, together with "http://www.fundacionareces.es/fundacionareces/" Fundación Areces, a specialized seminar series on these diseases.On Sunday 2, VHIR will also participate in the "http://www.rtve.es/television/20140227/emotividad-sorpresas-gran-espectaculo-telemaraton-investigacion-enfermedades-raras/887937" "http://www.rtve.es/television/20140227/emotividad-sorpresas-gran-espectaculo-telemaraton-investigacion-enfermedades-raras/887937" first telethon for rare diseases, which will be broadcasted in the Spanish public television, TVE. Dr. Pere Soler, researcher from Infection in Immunocompromised Pediatric Patients group, and doctor from the Infectious Pathology and Pediatrics Immunodeficiencies Unit at Vall d’Hebron University Hospital, will be interviewed at 11:15PM. Last Wednesday he also appeared in the programme ‘El Punt al Dia’ of La Xarxa.Didac is one of Dr. Soler’s patients at this unit that has positioned the hospital in the forefront of the health-care assistance to patients with PID, with nearly 700 patients diagnosed.