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20/04/2015

Vall d'Hebron releases 250 balloons, one for each known primary immunodeficiency disease

2015_0066_IMATGE

20/04/2015

Today begins the Wold PI Week, a group of rare diseases caused by alterations in the immunology system

Vall d’Hebron Research Institute (VHIR) is joining, one more year, the celebration of the "Vall d'Hebron Research Institute (VHIR) is joining, one more year, the celebration of the World Primary Immunodeficiency Week, which has the objective of increase the recognition and the diagnosis of these diseases. This year 250 ballons will be released with the collaboration of the 5th course students of the School Jesuïtes de Sant Gervasi-Infant Jesús and with the support of Designa SCP. Children diagnosed with Primary Immunodeficiency Diseases (PID) in the Hospital will also participate, and their families and health professionals implicated with their therapy will collaborate too." World Primary Immunodeficiency Week, which has the objective of increase the recognition and the diagnosis of these diseases. This year 250 ballons have been released with the collaboration of the 5th course students of the School Jesuïtes de Sant Gervasi-Infant Jesús and with the support of Designa SCP. Children diagnosed with Primary Immunodeficiency Diseases (PID) in the Hospital have also participated, with their families and clinicians.Primary Immunodediciency Diseases (PID)PID is a group that includes more than 250 different rare or minority illness caused by alterations in the immunology system of the children. They affect one in every 2.000 live newborns, and these people are susceptible to suffer severity infections that, in case of not being treated properly, could be dangerous or cause lasting damage.The early diagnosis and the research to find more effective treatments are very important to assure the patients survival and to improve their quality of live, reducing the lasting damage. Nowadays PID isn’t a sanitary priority and neither social.PID in the Vall d’Hebron HospitalThe University Hospital Vall d’Hebron leads the health attention of the pediatric patients in our country, with more than 700 diagnosed patients, the 70% of the total in Catalonia, according to the figures reported by the PID European Register of the European Society for Immunodeficiency and by the Jeffrey Modell Foundation (JMF). And among them, more than 400 are under 18 years old. In VHIR, the research groups of "http://www.vhir.org/larecerca/grupsrecerca/ca_grups_equip.asp?Idioma=en&mv1=2&mv2=1&mh1=2&mh2=1&mh3=1&mh4=0&ms=0&area=6&grup=6&menu=3" Infection in immunocompromised pediatric patients and "http://www.vhir.org/larecerca/grupsrecerca/ca_grups_equip.asp?Idioma=en&mv1=2&mv2=1&mh1=2&mh2=1&mh3=1&mh4=0&ms=0&area=7&grup=3&menu=3" Immunology investigate about it.Send Didac to 28014Didac is 4 years old and suffer a PID, the same disease led his brother to death. His parents have started a campaign to raise funds for research in this disease. If you want to collaborate, "http://www.vhir.org/salapremsa/noticies/noticies_detall.asp?Idioma=en&mv1=5&mv2=3&mh1=0&mh2=0&mh3=0&mh4=0&ms=0&any=2015&num=54" send a message with the word "DIDAC" to 28014, or donate through "http://www.yoinvestigo.org/colabora-vhir-donacio.php?id=101" Yo Investigo.

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