On April 1st, started the first series of conferences on rare diseases organized by Vall d’Hebron Institute of Research (VHIR), with the lecture of "http://www.vhir.org/activitats/relacioactivitats_detall.asp?Idioma=en&any=2014&num=37&mv1=4&mv2=1&titol=Registros+de+enfermedades+rara" Dr. Manuel Posada, director of the rare diseases institute at Instituto de Salud Carlos III. The Fundación Areces sponsors 8 out of the 12 seminars that will take place in Barcelona and Madrid, coinciding with the 20th anniversary of the Institute.The first lecturer who visited Vall d’Hebron talked about rare diseases registries which are basic data tools to foster research and improving the medical attention to these patients. The seminar took place at the lecture room located in the ground floor of the General Area of the Vall d’Hebron University Hospital, the same room that will host during the following weeks the seminars of "http://www.vhir.org/activitats/relacioactivitats_detall.asp?Idioma=en&any=2014&num=78&mv1=4&mv2=1&titol=Enfermedades+Raras,+en+el+Sena" Dr. Ignacio Burgos, driver and coordinator of the rare diseases workshop at the Senate, Dr. Francesc Palau, scientific director of the Spanish network on rare diseases (CIBERER), and "http://www.vhir.org/activitats/relacioactivitats_detall.asp?Idioma=en&any=2014&num=80&mv1=4&mv2=1&titol=Unidos+para+crecer" Juan Carrión, president of the Spanish alliance of rare diseases.The seminars with the support of Fundación Areces will take place in their auditorium located in Madrid, and in the 10th floor of Vall d’Hebron hospital. The first seminar will be conducted on April 30th at Vall d’Hebron by "http://www.vhir.org/activitats/relacioactivitats_detall.asp?Idioma=en&any=2014&num=86&mv1=4&mv2=1&titol=The+development+of+policy+and+" Dr. Alastair Kent, director at the Genetic Alliance UK that is the British charity of 150 patient organizations, supporting all those affected by genetic conditions.The other lecturers that will participate in the VHIR-Fundación Areces seminars are "http://www.vhir.org/activitats/relacioactivitats_detall.asp?Idioma=en&any=2014&num=81&mv1=4&mv2=1&titol=Rare+diseases+of+the+immune+sy" Dr. Christoph Klein, Physician-in-Chief and Chairman at the Dr. von Hauner Children’s Hospital in Munich (Germany), "http://www.vhir.org/activitats/relacioactivitats_detall.asp?Idioma=en&any=2014&num=84&mv1=4&mv2=1&titol=IRDiRC:+fostering+internationa" Dr. Paul Lasko, Scientific Director at the Institute of Genetics of the Canadian Institutes of Health Research, "http://www.vhir.org/activitats/relacioactivitats_detall.asp?Idioma=en&any=2014&num=83&mv1=4&mv2=1&titol=Disruptive+and+Innovative+Appr" Prof. Danilo Tagle, program director for Neurogenetics at the National Institute of Neurological Disorders and Stroke at the University of Michigan (USA), "http://www.vhir.org/activitats/relacioactivitats_detall.asp?Idioma=en&any=2014&num=82&mv1=4&mv2=1&titol=Optimizando+los+procesos+de+In" Virgina A. Llera, President at the International Conference on Rare Diseases &, Orphan Drugs and President of the Fundación GEISER Mendoza (Argentina), i "http://www.vhir.org/activitats/relacioactivitats_detall.asp?Idioma=en&any=2014&num=85&mv1=4&mv2=1&titol=Research+infrastructures+to+bo" Dr. Ségolène Aymé, chair of the Topical Advisory Group for Rare Diseases Orphanet and director of the Insitut Nationale de la Santé et de la Recherche Médical (France).More than 100 VHIR researchers study nearly 200 rare diseases from 26 different clinical areas. Besides, in the last 4 years, more than 230 clinical trials in these pathologies have been conducted at VHIR. "http://www.vhir.org/activitats/relacioactivitats_paginacio.asp?Idioma=en&mv1=4&mv2=1&mh1=4&mh2=1&mh3=1&mh4=0&ms=0&page=1&propera=true&anyoactividad=2014&tipus=1&subtipus=29" More information about the series of conferences on this link "http://www.vhir.org/activitats/relacioactivitats_paginacio.asp?Idioma=en&mv1=4&mv2=1&mh1=4&mh2=1&mh3=1&mh4=0&ms=0&page=1&propera=true&anyoactividad=2014&tipus=1&subtipus=29" "http://www.slideshare.net/VHIR/posada-spain-rdr-vall-d-hebron?utm_source=ss&utm_medium=upload&utm_campaign=quick-view" Watch Dr. Posada's presentation on Slideshare