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Estudio abierto, de seguridad a largo plazo, de tolerabilidad y de eficacia de GIVINOSTAT en todos los pacientes con DMD que hayan sido tratadospreviamente en uno de los estudios de GIVINOSTAT.

  • Protocol code: DSC/14/2357/51
  • EudraCT code: 2017-000397-10
  • Pathology: Distrofia muscular de Duchenne
  • Pharmac: GIVINOSTAT
  • Promoter: ITALFARMACO
  • Principal investigator:  Munell Casadesus, Francina
  • Research group:  Neurologia infantil
  • Service: Neurologia pediàtrica
  • Phase: Fase III
  • Recruiting: Open
  • Status: Activo

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Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.
Purpose: Request for information on VHIR clinical research.
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Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.
Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information 
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Seguimiento a largo plazo (LTFU) de pacientes tratados con la terapia celularCART dirigida a CD19 basada en vectores lentivirales

  • Protocol code: CCTL019A2205B
  • EudraCT code: 2014-001673-14
  • Pathology: Patologías del sistema immunitario. Seguimiento a largo plazo de pacientes expuestos a la terapia lentiviral con células CAR-T
  • Pharmac: Lentiviral-Based CD19 directed CAR T-Cell Therapy
  • Promoter: Novartis
  • Principal investigator:  Díaz de Heredia Rubio, Maria Cristina
  • Research group:  Càncer i malalties hematològiques infantils
  • Service: Oncohematologia Pediàtrica
  • Phase: Fase II
  • Recruiting: Open
  • Status: Activo

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Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.
Purpose: Request for information on VHIR clinical research.
Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.
Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.
Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.
Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information 
The request for information on a research project or clinical trial does not entail inclusion in it.

A phase 2, multicenter, open-label study to assess appropriate dosing and to evaluate safety ofcrizanlizumab, with or without hydroxyurea/hydroxycarbamide, in sequential,descending age groups of pediatric sickle cell disease patients with vaso-occlusive crisis.

  • Protocol code: CSEG101B2201
  • EudraCT code: 2017-001747-12
  • Pathology: Células Falciformes con crisis vaso-oclusivas.
  • Pharmac: Crizanlizumab, with or without Hydroxyurea/Hydroxycarbamide
  • Promoter: Novartis
  • Principal investigator:  Díaz de Heredia Rubio, Maria Cristina
  • Research group:  Càncer i malalties hematològiques infantils
  • Service: Oncohematologia Pediàtrica
  • Phase: Fase II
  • Recruiting: Closed
  • Status: Cerrado

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Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.
Purpose: Request for information on VHIR clinical research.
Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.
Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.
Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.
Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information 
The request for information on a research project or clinical trial does not entail inclusion in it.

Estudio multicéntrico, aleatorizado, con doble enmascaramiento y controlado con placebo de la eficacia y la seguridad de LJPC-501 en pacientes pediátricos de >2 a 17 años de edad con hipotensión resistente a las catecolaminas asociada a shockdistributivo.

  • Protocol code: LJ501-CRH04
  • EudraCT code: 2017-005153-37
  • Pathology: Hipotensión resistente a las catecolaminas asociada a shock distributivo
  • Pharmac: LJPC-501
  • Promoter: La Jolla Pharmaceutical
  • Principal investigator:  Balcells Ramirez, Joan
  • Research group:  Recerca clínica/Innovació en la pneumònia i sèpsia
  • Service: UCI Pediatria
  • Phase: Fase II
  • Recruiting: Closed
  • Status: Cerrado

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Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.
Purpose: Request for information on VHIR clinical research.
Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.
Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.
Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.
Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information 
The request for information on a research project or clinical trial does not entail inclusion in it.

Ensayo internacional pediátrico en tumor hepático

  • Protocol code: RG_15-114
  • EudraCT code: 2016-002828-85
  • Pathology: Hepatoblastoma y carcinoma hepatocelular
  • Pharmac: C5VD, SIOPEL-3 high risk, cisplatin monotherapy, GEMOX
  • Promoter: University of Birmingham
  • Principal investigator:  Sábado Álvarez, Constantino
  • Research group:  Càncer i malalties hematològiques infantils
  • Service: Oncohematologia Pediàtrica
  • Phase: Fase III
  • Recruiting: Closed
  • Status: Finalizado

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Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.
Purpose: Request for information on VHIR clinical research.
Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.
Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.
Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.
Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information 
The request for information on a research project or clinical trial does not entail inclusion in it.

Segundo estudio internacional intergrupo para el linfoma de Hodgkin clásico en niños y adolescentes. Estudio EuroNet-PHL-C2.

  • Protocol code: EURONET-PHL-C2
  • EudraCT code: 2012-004053-88
  • Pathology: Linfoma de Hodgkin
  • Pharmac: DECOPDAC-21 protocol +/- radiation
  • Promoter: Justus Liebig University of Giessen
  • Principal investigator:  Sábado Álvarez, Constantino
  • Research group:  Càncer i malalties hematològiques infantils
  • Service: Oncohematologia Pediàtrica
  • Phase: Fase III
  • Recruiting: Closed
  • Status: Cerrado

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Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.
Purpose: Request for information on VHIR clinical research.
Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.
Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.
Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.
Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information 
The request for information on a research project or clinical trial does not entail inclusion in it.

Estudio prospectivo internacional de meduloblastoma riesgo estándar clínico en niños mayores de 3 a 5 años, con perfil bajo de riesgo biológico (PNET 5 MB - LR) o perfil medio de riesgo biológico (PNET 5 - SR MB).Estudio SIOP

  • Protocol code: SIOP-PNET5MB
  • EudraCT code: 2011-004868-30
  • Pathology: Medulloblastoma
  • Pharmac: neuraxis irradiation + chemotherapy
  • Promoter: Sociedad Española de Hematología y Oncología Pediátricas
  • Principal investigator:  Llort Sales, Anna
  • Research group:  Càncer i malalties hematològiques infantils
  • Service: Oncohematologia Pediàtrica
  • Phase: Fase III
  • Recruiting: Open
  • Status: Activo

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I have read and accept the data protection policy *.
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Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.
Purpose: Request for information on VHIR clinical research.
Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.
Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.
Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.
Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information 
The request for information on a research project or clinical trial does not entail inclusion in it.

Estudio aleatorizado de fase IIb con bevacizumab asociado a temozolomida ± irinotecán en niños y jóvenes con neuroblastoma resistente o recidivan.

  • Protocol code: RG_11-087
  • EudraCT code: 2012-000072-42
  • Pathology: Neuroblastoma
  • Pharmac:  bevacizumab added to temozolomide ± irinotecan
  • Promoter: The University of Birmingham
  • Principal investigator:  Moreno Martín-Retortillo, Lucas
  • Research group:  Càncer i malalties hematològiques infantils
  • Service: Oncohematologia Pediàtrica
  • Phase: Fase II
  • Recruiting: Closed
  • Status: Finalizado

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Controller: Fundació Hospital Universitari Vall Hebron Institut de Recerca – VHIR- G60594009.
Purpose: Request for information on VHIR clinical research.
Legitimation: Your consent. The data requested is necessary and your request cannot be processed if you do not provide them.
Transfers: Your data will not be transferred to third parties except to the Principal Investigator who leads the research in order to be able to respond to your query.
Data retention time: As long as they are useful for the purpose for which they were collected and responsibilities may arise.
Rights: You can access, rectify, delete your data, oppose or limit its processing and request its portability, as well as revoke your consent without retroactive effects by contacting lopd@vhir.org. The revocation of consent and the opposition to the processing of your data will prevent the purpose from being carried out. DPO: dpd@ticsalutsocial.org. More information 
The request for information on a research project or clinical trial does not entail inclusion in it.
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